JOSHUA’S JOURNEY OF HOPE
30141 Antelope Road, Box D-635
Menifee, CA 92584
Joshua’s Journey of Hope is a non-profit
tax-exempt entity under Section 501(c)3.
Federal Tax ID #26-3806532. Your gift is tax
deductible and all funds raised go to
Cystinosis is an incurable metabolic disease that afflicts 500 children and young adults in the U.S. and only 2,000 worldwide. There is no cure for Cystinosis, but there is hope.
Joshua’s Journey of Hope is a volunteer, non-profit organization dedicated to raising funds and supporting research for improved treatments and a cure for Cystinosis, and educating the public about the disease.
Joshua was born on November 14, 2006, a healthy 7.0 lbs. We had no idea that anything was wrong with him. Our tumultuous journey began at his 6 month well baby visit. He had
gained 2 ounces, not grown in length and was completely falling off the growth chart. He was
not eating well and did not take to eating solid foods.
We tried supplementing with formula, fortifying his baby foods and nothing worked. He would
throw up almost everyday but the one thing we could count on was his unquenchable thirst. No
matter how much we would give him, he just wanted more. If we gave him too much, he
would throw it all up. He was admitted to the hospital in July of 2007 for dehydration. His
hospitalization lasted 4 days and the diagnosis came back as acid reflux and “Genetic Rickets”.
We began treating him with medication and quickly saw improvement in his strength. He
began crawling as a normal 8 month old. However, his eating did not improve. He
continued to gag, even when he wasn’t eating, and throwing up was a daily event. We could feel
that something still wasn’t right. At one year of age, Joshua weighed just 13 lbs. The day after
his 1st birthday, he was once again admitted to the hospital for dehydration.
Cystinosis is a rare, incurable metabolic disease that afflicts 500 children and young adults in the
United States and only 2,000 worldwide. The amino acid cystine accumulates and crystallizes
in cells due to abnormal transport of the cystine. This build up eventually destroys all the body’s
organs including the kidneys, liver, muscles, white blood cells, eyes, and central nervous system.
In Partnership with Natalie’s Wish and the Cystinosis Research Foundation